Useful Resources
On this page you will find forms, useful materials, publications and additional websites that may be of interest.
To access many of the support programs available to your patients* with NITYR (nitisinone) Tablets, they will need to sign a patient authorization for use and disclosure of personal health information (PHI) form. Please see the links below for our Cycle VitaTM PHI forms which are available in English and various other languages. Translation services are available if your patient speaks a language not covered below.
HCP Further Education**
MENTOR®
MENTOR® is a free online Tyrosinemia Type 1 training resource was developed by Ligia Smith, RD, CSP, LDN and MET-ED®. Learn about the background of Tyrosinemia Type 1: genetics, clinical presentation and diagnosis, nutrition management, clinical monitoring, management during illness and pregnancy, diet calculations and more.
Metabolic University® is an interactive, didactic program created by MET-ED® designed to provide training to dietitians and other medical providers working in the field of inborn errors of metabolism.
Advocacy and Patient Groups**
The Tyrosinemia Society
The Tyrosinemia Society is the first and only international patient advocacy group for patients and families affected by Tyrosinemia that is led by a healthcare provider and a mother of two patients with Tyrosinemia.
National Organization for Rare Diseases (NORD)
NORD is a patient advocacy organization, dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 260 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research and patient support.
The Groupe d’Aide aux Enfants Tyrosinemiques du Quebec (GAETQ)
The Quebec Tyosinemic Children’s Aid Group (GAETQ) was founded by parents who wanted to give themselves the means to address their child’s illness. The group provides resources for parents to meet the needs of their child with tyrosinemia type 1. The website is in French.
The Network of Tyrosinemia Advocates (NOTA)
Starting as a simple Facebook Group, NOTA is a large community of families and friends who are or know someone who is affected by Tyrosinemia.
Cooking and dietary support websites which may be useful:
Cook for Love
Cook for Love is a culinary not-for-profit organisation, dedicated to the phenylketonuria (PKU) community. PKU is a rare inherited metabolic disorder and similarly to tyrosinemia type 1, requires people with the condition to follow a highly restricted low protein diet. Cook for Love provides step by step instructions and videos for making meals and treats suitable for a low protein diet.
*Some areas of support may not be accessible to all patients. Eligibility criteria may apply to ensure compliance with all applicable federal and state requirements, and benefits may be limited to commercially insured patients only. For more detailed information about eligibility, terms and conditions, please contact the Cycle Vita team at +1 (888) 360-8482.
**Cycle Pharmaceuticals is not affiliated with these organizations. These organizations are provided for reference, and Cycle Pharmaceuticals does not recommend one over the other. The content of these websites is the sole responsibility of the website providers. Cycle Pharmaceuticals cannot guarantee the services offered by these organizations and does not control, review, edit, or influence this third-party content.