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Patient Stories

Alina's Story

When Alina’s parents learned she had Hereditary Tyrosinemia Type 1 (HT-1), they were understandably concerned. But, w…

Ethan's Story

Five-year-old Ethan has Hereditary Tyrosinemia Type 1 (HT-1). Like any family that has a child with this ultra rare…

Jamie's Story

Jamie, aged 23, was diagnosed with Tyrosinemia Type 1 when she was 6 months old, and while her journey to adulthood…


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